Want To Connect With Others With ED? Want an iPad2? Look No Further!

Things have been crazy lately. With the semester winding down, tonight is the first night in a while where I really don't have to do anything (and I can even sleep in tomorrow morning!). It's pretty awesome, especially after a few nights of going to sleep around one thirty when my normal bedtime is about two hours earlier. So what do I do with all my free time? Well scan the latest news on NFED.org for some new information to share with you guys, of course! No critical life changing breakthroughs today, but I did find something that I thought was worth sharing. The Nation Foundation of Ectodermal Dysplasia is currently asking those with ED to take part in a registry that they are creating to help diagnosed individuals and their families connect with other families that are affected by ED as well as clinicians and scientists. There is even a function on the website where you can submit questions to experts about ED at no cost to you. The page lists these as their main focuses:

Objectives

• Characterize and describe the ectodermal dysplasias population.
• Assist the development of recommendations and standards of care.
• Facilitate in the planning of clinical trials.
• Accelerate and facilitate clinical trials by locating potential research participants quickly and efficiently.

It's really simple to take part in this registry. All you have to do is click here, register on the website, and complete your profile. It took me about twenty minutes to complete total (granted, I didn't know some of the answers to the questions they posed, but you aren't required to answer every single one so no worries there). And the cool part is that this registry isn't limited to just the United States- it's international! There are groups from Australia, Austria, Germany, Belgium, Denmark, France, Italy, Mexico, Netherlands, Belgium, Luxembourg, Norway, Spain, Sweden, Turkey, and the United Kingdom that are all taking part in this! And as an added little bonus, everyone who registers as part of this registry before July 18, 2012 and answers all of the questions is eligable to win an iPad2! So go check it out now!