Obviously, for this specific type of ED there really aren't many cases that are seen. But for ectodermal dysplasias in general, there are said to be about seven cases for every ten thousand births internationally. This includes about one hundred and fifty different kinds of ectodermal dysplasias and doesn't include those that are misdiagnosed or never diagnosed at all. There can even be individuals diagnosed with ectodermal dysplasia- type unknown because of the fact that they don't seem to fall cleanly into one type of dysplasia. That is one of the reasons dealing with ED can be so difficult- there are so many symptoms and so many types that it can frankly be quite overwhelming.
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